Wednesday, 16 March 2011

Wednesday 16th March

This is the last post. Thank you so much to all of you who managed to get to Jane's funeral celebration today; we were overwhelmed by all your love and prayers. It is as Jane would have wanted.

Leo's tribute:
"These are words that I have thought about saying for years. My Great hope is that what I say now is what my Mother knew when she departed.

In one sense I think there is only one thing I can say about my Mother. My Mother was amazing. I shall repeat that in the present tense because even now, from her distant perch, her love has brought you here. My Mother is amazing.

She amazed me; she amazed my Father, my sister, my cousins, my Granddad and Nana, My Uncle and Aunt.

She amazed doctors, vicars, friends, acquaintances and she even amazed herself.

She was amazing because she defied expectations; she tore down the graphs of medical austerity that decreed ‘here is your condition and here are our estimates’. She refused to cower in the shadow of a cruel disease. She refused to be defined by her illness.

She was amazing because she held our family together, through faith and forgiveness and unconditional love she bound us.

She was amazing because she always wanted to learn and grow and to help others to do so. She was a teacher and as all great teachers she was an eternal student.

She was amazing because no matter how ill she was she could always manage a bit of chocolate…or custard.

She was amazing because she was human and could get cross. I remember a hectic school day morning dashing around our house in Odiham. Her struggling to get my sister and I, aged 5 and 7, into the car. She lost her temper and shouted at us but when she got into the car she turned to us and said.

“I’m sorry for shouting children, but you know I love you don’t you?”

“Yes”-said Lydia.

“No” said I.

She repeated the question.

“Leo! You know I love you don’t you?”

I measured my response for maximum impact.

“NO YOU DON’T YOU WISH MY EYES WOULD DROP OUT!”

She was amazing because she knew the value of life. She never lost the battle to cancer. Her body could no longer bare the weight of her soul. Her soul that was full to the brim with a love that kept her here. A love that seems to have rippled out and returned with all of you. A love so great, that when it came to the end it was unspeakable. Words simply cannot convey the feeling. To understand it would be to understand the universe. She was amazing because of that love.

She was amazing because she was my Mum".


I found the following, an extract from John Austin Baker's book:


I rest on God, who will assuredly not allow me to find the meaning of life in his love and forgiveness, to be wholly dependent on Him for the gift of myself, and then destroy that meaning, revoke that gift. He who holds me in existence now can and will hold me in it still, through and beyond the dissolution of my mortal frame. For this is the essence of love, to affirm the right of the beloved to exist. And what God affirms, nothing and no-one can contradict.


And this poem by Carol Ann Duffy called "Prayer":


Some days, although we cannot pray, a prayer

utters itself. So, a woman will lift her head from the sieve of her hands and stare

at the minims sung by a tree, a sudden gift....


Pray for us now. Grade 1 piano scales

console the lodger looking out across

a Midlands town. Then dusk, and someone calls

a child's name as though they named their loss.....


Darkness outside. Inside, the radio's prayer -

Rockall. Mallin. Dogger. Finisterre.


It has been an amazing journey. Thanking you all for sharing the ride and supporting us so wonderfully.


God bless you all.

Wednesday, 9 March 2011

Wednesday 9th March

I had intended to post one last blog after the funeral but I write now having just moved from Jane's chair by the window where I have been reading a huge pile of letters and cards. I wanted to record now our heartfelt gratitude for all those loving messages, some popped through the front door by hand and others from around the world; it is very humbling and moving - I confess to being reduced to tears by many of your messages.

We know we have been blessed in so many respects and we just have to deal with the paradox of simultaneously losing our Jane from our midst.

Last year Christopher Reid's book of poems "A Scattering" won a prize and we bought a copy (it is wonderful). It included a poem called "Please Explain Tears". I have wept a lot in the past days and weeks and my explanation is that they work like the heavy rain that follows that sultry, hot thundery weather. They clear the air and make it fizz. I think Jane would approve.

We will see many of you next week.

God bless you and thank you again from the three of us.

Monday, 7 March 2011

Monday 7th March


7pm. Jane's funeral will be on Wednesday 16th March commencing at 1pm at St Paul's church in Salisbury. (They have a website for directions). Parking is likely to be very tight and I suggest you park on the Central Car Park and walk across to the church - it's about a ten minute stroll along Fisherton Street.

Jane very much wanted this to be a celebration. She suggested that you wear something in which you are comfortable; as you know, Jane loved colour and there is certainly no obligation to wear black.

We are requesting family flowers only and donations to Salisbury Hospicecare Trust via Chris White Funeral Directors, 12 South Street, Wilton, SALISBURY SP2 0JS. (There will be a retiring collection for the Hospice as well).

Immediate family only will accompany Jane to the crematorium. We will rejoin you for light refreshments in the Church Centre afterwards. We have no idea how many may attend so it could be interesting.

We have continued to receive so many wonderful messages of love and support - thank you.

God Bless you.


Saturday, 5 March 2011

Saturday 5th March


The world looks very different today - the sun is not shining today after a beautiful day yesterday. Lydia, Leo, Luke and I went to the pub for a couple of beers with Luke's parents and then came back home for a curry - but early nights all round after an exhausting time.

I do not yet know the date of the funeral but I am fairly it will be on either 15 or 16 March probably commencing at about 1130am. As soon as I can, I will confirm the date and time and provide other details.

I have a message for our dear friend, Eva, in Germany. I have tried to respond to your emails but for some reason they don't get delivered to you; I don't know why.

In the past 24 hours we have received some wonderful letters, messages, texts and emails. Thank you all so much. They are a great comfort to us at this difficult time.

Leo and I were looking back through photographs on the computer yesterday afternoon and we found this one taken at St Thomas' Christmas Tree Festival some years ago.

God bless you.

Friday, 4 March 2011

Friday 4th March

10am. Jane left us this morning at 7.55am. She was very peaceful and very beautiful. Lydia, Leo and I were with her. I will post details of the funeral etc in due course.

Thank you all for staying with us on this very special journey. We all appreciate the love and support you have given us.

God bless you.

Thursday, 3 March 2011

Thursday 3 March

6.30pm. Jane is still with us, erratic breathing, very pale but entirely at peace and looking very beautiful. Going back to her now.

God bless you and thank you all for continuing support in all your ways.

Wednesday, 2 March 2011

Thursday 3rd March

7.30am. Jane has had a peaceful night. Her breathing has eased and she continues to sleep.

Wednesday 2nd March

6.45pm. It feels like we are back where we were 3 weeks ago today. Jane's whole pallor has changed - now very pale and drawn. Her breaths come intermittently and they are rasping.

I left Jane this morning after a broken night when she had needed some extra medication and the site for her syringe driver needed to be changed. She was zonked out but seemed pretty stable (everything is relative). I had a call just after 10am from the hospice to say her condition had changed. I came back and picked up Leo and went straight there. Lydia joined us a little later. We have spent the day together with Jane just chatting and reminiscing.

We are going back there now; we'll pop out for a snack at a local pub and then go straight back again. Lydia and Leo will stay at the hospice tonight too. Jane has constantly surprised us and so I make no predictions. However, we do ask you for your prayers for her tonight; we have been blessed to have this time.

God bless you.

Tuesday, 1 March 2011

Tuesday 1st March

7pm. Jane had a little porridge this morning and a very little custard at lunchtime and this evening. But on the whole she has been very tired. Leo and Lydia were with her during the day and that allowed me to go to the office for a few hours. Leo and I went back this evening but she was pretty much spark out.

We had some really good messages and phone calls today and a lovely card from Sally C in Ontario; Sally, I read out your list of happy memories to Leo and Jane. I remember that trip to Avebury Ring in 1989(!!) so well. Thank you too, Holly.

I am sorry that I don't have anything more positive to say - it's the nature of this particular journey.

God Bless you.

Monday, 28 February 2011

Monday 28th February

8pm. Jane has slept most of today but she did have a little porridge for breakfast and some custard at lunchtime. The morning wash pretty much wears her out. She was awake when the doctors came around and told them that she had just about had enough - she wasn't specific but I don't think she was just referring to the morning wash routine.

I spoke with the docs afterwards and we agreed that we are all witnessing a steady decline but that none can predict its likely duration. In Leo's words "it's like her body's just not strong enough to bare her soul any more".

I didn't go to work at all day - I felt the need to spend time with Jane. She is very peaceful and relatively pain free except when she is moved.

We continue to get the most wonderful messages of support and cards too. I relay all messages to Jane - even if she doesn't open her eyes I know that she absorbs them - something like osmosis.

My reading matter has changed. I have finished the Montaigne biography and returned to an old friend - Patrick Leigh Fermor - "Mani". Jacquee M sent me "A Time of Gifts" years ago and I have loved him ever since.

The picture was taken on Christmas morning in 2006; it's absolutely Jane.

God bless you.

Sunday, 27 February 2011

Sunday 27th February

5.30pm. I have been with Jane most of the day. I stayed with her whilst she was being washed and turned (to relieve pressure points) by the nurses. They are as gentle as they can be but I am now much more aware of how immobile Jane has become, how weak she is and how physically reduced. She has been asleep most of the day but has eaten some porridge, drunk some juice through a straw and took a cup of custard. I feed Jane the custard with a teaspoon. She seems to know instinctively when the spoon is at her lips (she doesn't open her eyes) and she guides the spoon back out of her mouth with her fingers - this is the most intimate act we share now - much more than the affectionate peck on the cheek that I give her from time to time. It's just very special.

As I type, Lydia is with Jane. Leo and I will go up later. There is little more I can say for now.

God bless you.

Saturday, 26 February 2011

Saturday 26th February

7pm. I confess that I came home to watch England's battle against France - exhausting to watch, never mind to play in. Lydia and Maggie were with Jane. Earlier this afternoon Jane wolfed down some custard but straight afterwards was back to sleep.

I am about to have supper with Leo and will go back straight afterwards.

I have had a number of lovely phone calls today - thank you for those - and for all the other emails and messages.

God bless you.

Saturday 26th February

2pm. Jane has been asleep all day apart from a couple of moments of wakefulness. I will blog again later.

Friday, 25 February 2011

Friday 25th February

7pm. Jane is more tired today - but peaceful. She has had a little to eat. The nurses have given her some medication to ease her aching bones and make her more comfortable. She does not have quite as much colour and I believe she may be a little weaker - this is part of a pattern with which we are becoming familiar.

Thank you all for your messages. Jane had a beautiful card from Cyprus today, now by her bed.

And, Sue, thank you for your message re Leo's quilt. He was with me when I picked it up and is thrilled and sends many thanks - you're a star. I know Jane will really appreciate that.

Thank you all for your continuing texts, messages, emails etc - it is all quite humbling.

God Bless you.

Thursday, 24 February 2011

Thursday 24th February

I want to start this evening (8pm, Shane) by thanking all of you for your prayers and messages of support both for Jane and for me and the children. I write something along these lines every evening - we do sincerely appreciate what you do for us.

Jane had a little porridge for breakfast and has had some custard at supper time. However, she is very tired and uncomfortable. She had visits today from Jonathan and her mother and also from Ellie and Richard Morgan from St Paul's - a full day for anyone and probably a bit on the steep side for Jane.

When I left her she was sleeping and I hope that she will be peaceful through the rest of the night. I pray that she will have a quieter day tomorrow.

The picture was taken in Gozo in 2008.

God bless you

Wednesday, 23 February 2011

Wednesday 23rd February

Sometimes I worry a little about getting the balance right here - whether we say enough or too much. I think I said yesterday that Jane was more wakeful; she was and she is today - but she is also quite distressed. It must be like coming up out of a coma. She expressed her unhappiness at being in the hospice for "what feels like weeks". She is concerned about the drugs that she is on (actually very low doses), she gets cross with us over little things (we can deal with that) and I think she is just thoroughly fed up to the back teeth - and why shouldn't she be? It is a real benefit that the children and I can sit and share our thoughts in this respect.

When I left her this evening to come and have supper with Leo she was much quieter and calmer but these wild peaks of awareness are really hard to deal with both for her and for us. I don't recall if I mentioned I am reading a fantastic biography of Montaigne; his philosophy of suspending judgement on virtually everything seems entirely appropriate for just now - what a timely find!

You really have sent us some wonderful and uplifting messages, blog comments, emails and cards. We relay to Jane what she cannot see; she knows how much you all care.

This journey continues to be full of surprises - one day at a time.

God bless you.


Tuesday, 22 February 2011

Tuesday 22nd February

7pm. As soon as I fear the worst, or write the worst, Jane bucks up a bit! She is much more awake today and has had a couple of small bowls of custard. She hasn't spoken a great deal but she has shot a couple of sharp looks when I haven't got things quite right.

It has been busy too. Her dear friend, Sara, from Oasis womens' group spent a little time with Jane and Leo this morning. She was followed by Karen this afternoon (who was over from Paris) - we have known Karen and Mike since our days at SHAPE back in the mid 90s. Then Jonathan and Cherry came for a little while, dashing down from Oxford and then dashing back!

Jane can only take visitors in tiny chunks - 5 or 10 minutes at most; it leaves her pretty tired. She is a marvel though and I can only wonder at her strength.

I can't wait to tell her that the Cornish Pasty has been awarded special status by the EC. My mum would have been thrilled too.

Continued thanks for prayers and messages.

God bless you.

Monday, 21 February 2011

Monday 21st February

The children were with Jane this morning whilst I sped up to Shrivenham to sit an exam; I rejoined them at lunchtime. Jane had a quiet night but the doctors have increased her painkillers to make her more comfortable in the bed. She is only rarely awake now but she does open her eyes and acknowledge a new face when someone enters the room.

The doctors assess that she is starting to slip off the little plateau upon which she has been perched for the past few days - I think we sense it too. We now just need to take each day as it comes and place our faith in God and pray for Jane's peace and comfort.

I am receiving so many messages now and I can only repeat to you all here how much they mean. I will be in touch individually eventually.

God bless you.

Sunday, 20 February 2011

Sunday 20th February


Jane was awake early(ish) this morning and had a little porridge. I think she has been slightly more wakeful today because I fear there are now more pressure spots. As she becomes weaker she is less easily able to move in the bed and so these sore spots develop very quickly.

Jane's very dear friends, Shirley and John, popped in briefly at midday. We have known each other ever since before the children were born and when Jane was diagnosed with breast cancer back in 1992 (!!), it was Shirley who scooped the rest of us up and helped us to cope.

After lunch, Lydia, Luke and I all went back to see Jane and I stayed on after they went home. Jane is still a bit restless; I am going back there shortly. Leo has delayed his return to London.

Cards and wonderful messages continue to arrive - thank you.

The picture was taken in the Gaudi park in Barcelona back in 2008 - a wonderful little holiday.

God bless you.

Saturday, 19 February 2011

Saturday 19th February

Jane is sleeping most of the time at the moment - in excess of 20 hours a day at the moment. She missed breakfast but did have a little custard (surprise, surprise) at lunchtime.She is comfortable, peaceful and not in any pain.

Be assured that when she is awake she is capable of issuing the clearest directions!

Jane's dear friend, Caroline, made a day trip from Edinburgh to see her today - it was lovely to see her and Leo and I were able to have lunch with her before she dashed back to the Airport.

Thank you all for your love at this time from all of us.

God bless you.